My name is Lisa and I’m an RPV Patient Caregiver whose grandson overcomes Muscular Dystrophy I participate in the Rare Patient Voice because I have a grandson who has muscular … READ MORE
Jennifer MD
My name is Jennifer and I’m an RPV Patient Panelist who’s overcoming Muscular Dystrophy. Hello. I am Jennifer, and I live in Maryland. I have been a member of Rare … READ MORE
Amanda
My name is Amanda and I’m an RPV Patient Panelist who’s overcoming a bleeding and platelet disorder. Thanks for taking the time to watch my video. I was asked why … READ MORE
Charly Blakk S Cell
My name is Charly and I’m an RPV Patient Panelist who’s overcoming Sickle Cell Anemia I was a part of the Rare Patient Voice I believe since March of 2017. … READ MORE
