Hey, so I’m Rob. I’m going to talk a little about my experience with Rare Patient Voice. Um, it’s been a really good experience. I like doing the surveys because … READ MORE
Christian
My name is Christian and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis How does Rare Patient Voice fit into your life regarding support groups with others who understand/share … READ MORE
Kristopher
My name is Kristopher and I’m an RPV Patient Panelist who’s overcoming Hemophilia. I really like taking the surveys because I feel like I’m making an impact. I’m able to … READ MORE
Keith MS
My name is Keith and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis My choice today is to not be afflicted by MS but to live with MS. To … READ MORE
Jessica
My name is Jessica and I’m an RPV Patient Panelist who’s overcoming Kugelberg Welander disease I have spinal muscular atrophy type 3, also known as Kugelberg Welander disease. I do … READ MORE