Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives. The survey results then … READ MORE
New on the Bookshelf: Reinventing Patient Centricity
Reinventing Patient Centricity: Bringing patient-led business models to life, by Sharon Suchotliff and Hensley Evans We hear a lot about patient centricity these days. A Google search on the term … READ MORE
Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight
President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses … READ MORE
“Beyond Limits” Explores Rare Disease Men’s Thoughts on Mental Health
On World Mental Health Day, Rare Disease Patient and Advocate David Ross Releases New Film, “Beyond Limits: Rare Men Talking Mental Health” Towson, MD, 10.10.2022 – Today, in support … READ MORE
For a Second Year, RPV Ranks on Inc 5000 List of Fastest-Growing Private Companies!
For the Second Time, Rare Patient Voice Ranks on the Inc. 5000, Ranking #3981 With Three-Year Revenue Growth of 122% Inc. Magazine Reveals Annual List of America’s Fastest-Growing Private Companies … READ MORE
