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Helping patients and caregivers share their voices

“Beyond Limits” Explores Rare Disease Men’s Thoughts on Mental Health

October 10, 2022 Laura Mullen

On World Mental Health Day, Rare Disease Patient and Advocate David Ross Releases New Film, “Beyond Limits: Rare Men Talking Mental Health”

 

Towson, MD, 10.10.2022 – Today, in support of World Mental Health Day 2022, rare disease patient and advocate David Ross is proud to release his new film, “Beyond Limits: Rare Men Talking Mental Health.’” Rare Patient Voice LLC, a leading firm connecting patients and family caregivers to opportunities for sharing their voices, has teamed up with David to address the often overlooked topic of the mental health of men whose lives are impacted by rare disease. 

One in four people globally struggle with a mental illness – more than cancer, diabetes, or heart disease, according to Clubhouse International. In the US alone, forty-two million Americans experience a mental illness each year, according to the National Center For Health Statistics. In today’s society, mental health still has a prominent stigma surrounding it. This video was created in order to help normalize mental health needs, especially as it relates to men coping with a rare disease as a patient or family caregiver. 

“Mental health should be treated the same as physical health. I want men to see talking about their mental health as a strength. I think this is even more important when living with a rare disease as it comes with many added layers,” said Ross, who lives with Cowden syndrome himself.

“Beyond Limits” features insights from men impacted by rare disease as they answer thought provoking questions about their experiences with mental health. The video can be accessed in its entirety on the Rare Patient Voice Youtube channel here: https://youtu.be/BmQKPkT3kvs. Please mark #WorldMentalHealthDay by helping to spread the word about this impactful new work.

 

About Rare Patient Voice

Rare Patient Voice, LLC provides patients and caregivers an opportunity to participate in all types of research including market research, health economics outcomes and real-world evidence, user experience/human factors studies, and clinical trials. RPV has over 100,000 patients and caregivers across more than 700 diseases, both rare and non-rare. Visit us at www.rarepatientvoice.com.

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