I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Patient Blog Posts
Client Blog Posts
RPV on the Road: Meeting Our Community at Patient Events and Conferences
At Rare Patient Voice, we love getting out from behind our screens and meeting our community in person. There’s nothing better than being in person and hearing the stories that … READ MORE
Sharing My Voice: Kathryn’s Story
Kathryn was diagnosed with colon cancer in 2024, and is passionate about contributing to research, specifically research aimed at young adults. She loves working with Rare Patient Voice so much … READ MORE
The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
The Co-Design Revolution: Patients and the Future of Clinical Trials
The landscape of clinical trials, particularly within the area of rare diseases, is undergoing a necessary and profound evolution. No longer is the patient merely a passive subject; they are … READ MORE







