I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
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Patient Blog Posts
Client Blog Posts
Sharing My Voice: Kathryn’s Story
Kathryn was diagnosed with colon cancer in 2024, and is passionate about contributing to research, specifically research aimed at young adults. She loves working with Rare Patient Voice so much … READ MORE
Weekly Warrior: Meet Autumn
“Hi lovely spoonie friends! My name is Autumn Meadows (she/her), and I’m a 21-year-old disability, chronic illness, and mental health advocate from western Colorado, living with M.E, Dysautonomia, and several … READ MORE
Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
When a rare disease strikes, we might think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. … READ MORE
Meet Our Team: Patrick Kobrick, Business Development Associate
Patrick Kobrick joined Rare Patient Voice in 2020 and works for the company as a Business Development Associate. He is currently pursuing a BS in Astrophysics. Patrick works to ensure … READ MORE