I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
Join the RPV community!
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In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Patient Blog Posts
Client Blog Posts
Happy Labor Day from RPV!
Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
Weekly Warrior: Meet Keyla
Our latest Weekly Warrior is Keyla, who shared her story with us recently. “Hi, I’m Keyla, I’m 38 yrs old and I have Crohn’s Disease, and I am a care … READ MORE
RPV and the Patient Voice on The Pickle Jar Podcast
“The Pickle Jar Podcast” host Jill Battle lives with a rare autoimmune disease. Her mission is to advocate, educate and empower people living with Addison’s disease and other invisible illnesses to … READ MORE
RPV’s Pam Cusick on The Special Needs Voice Podcast
Oak Wealth Advisors’ “The Special Needs Voice” podcast features interviews with top leaders in the special needs community. Host Tony Schneider hopes that listeners will learn something new and gain information for … READ MORE