I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
Join the RPV community!
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In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Patient Blog Posts
Client Blog Posts
Weekly Warrior: Meet Julie
“Hello world! Julie here, aka @msxstrong. l was diagnosed with Multiple sclerosis back in 2019, after years of grappling with different symptoms. One of the many things I’ve learned from … READ MORE
Weekly Warrior: Meet Amy
Amy Gietzen is a passionate patient advocate, public speaker, program developer, and educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Several years later she was also … READ MORE
Meet Our Team: Mirza Mujdzic-Jojic, Business Development Associate – EU
Mirza Mujdzic-Jojic joined RPV in December 2023 as a Business Development Associate – EU, helping to drive RPV’s growth strategy by identifying new business opportunities in the European market and … READ MORE
RPV’s Rare Caregiver Survey Featured in Rare Revolution Magazine
Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives. The survey results then … READ MORE