Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives. The survey results then were shared in a webinar with Rare Revolution Magazine this past spring. Now the results, along with Wes, a rare disease patient, and her caregiver husband are featured in the latest issue of Rare Revolution Magazine.
Helping Patients with Rare Diseases Voice Their Opinions
