Rare Patient Voice conducted a study among n=3455 patients and caregivers to gain a better understanding of their experience with Patient Advocacy groups and their thoughts about collaboration between Patient … READ MORE

In the past few weeks we have been on the road attending conferences, walks and 5K runs in support of our patients!  ‘Tis the season!  This weekend we attended a … READ MORE

Remember the movie Pay It Forward with Kevin Spacey? It’s been longer than I thought, it came out in 2000. The idea was simple – do something good for someone, … READ MORE

You may already know that we recruit many patients and caregivers personally at patient events such as walks, conferences, and educational forums. But did you know that we also get … READ MORE

I’m sure a key element in your success has been how you have built interpersonal relationships. Interacting with others, delivering good news as well as explaining and apologizing when things … READ MORE