As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). I was recently invited as a consumer to take part … READ MORE
The secret to your success
I’m sure a key element in your success has been how you have built interpersonal relationships. Interacting with others, delivering good news as well as explaining and apologizing when things … READ MORE
Caregivers – Myth and Reality
We talk about patients, but caregivers (or “carers” to our British friends) are also important. In some disease categories, such as Hemophilia, Lennox Gastaut Syndrome, and Spinal Muscular Atrophy, where … READ MORE
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