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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Some companies have customer service backwards

September 13, 2020 Wes Michael

I have a story about customer service that happened this week. I’m reading Edmund Morris’s book about Thomas Edison, which he tells from the end and works back to the … READ MORE

Filed Under: Business

What we can learn about business from the Blitz in 1940

August 29, 2020 Wes Michael

There are plenty of great business books out there, giving you ideas on how to improve all aspects of your business. To be honest, I prefer to read histories and … READ MORE

Filed Under: Business

Lessons from the Tortoise and the Hare

August 22, 2020 Wes Michael

I’m sure you all remember the story of the tortoise and the hare. The hare is much faster than the tortoise and he gets off to a much faster start … READ MORE

Filed Under: Business, Community, Patient

We’re still recruiting patients even during Covid

August 9, 2020 Wes Michael

Many of you may know that we recruit many of the patients and caregivers in our Rare Patient Voice patient panel by going to patient events like conferences, walks and … READ MORE

Filed Under: Business

Let’s Name our Zebra Mascot – but not Zebra McZebface!

July 29, 2020 Wes Michael

Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE

Filed Under: Business, Community, Patient

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Recent Posts

  • Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook
  • Pam Cusick Talks Caregiving on All Home Care Matters Podcast
  • RPV on the Road: Meeting Our Community at Patient Events and Conferences
  • Strengthening the Connection Between Client Needs, Patients’ Voices, and Trusted Data
  • Wes Michael Honored With 2025 Insight250 Award

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

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Rare Patient Voice, LLC, Market Research, Towson, MD
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