Feedback from clients is so useful to us! How else can we learn what we are doing right and where we need to make improvements? One way we get feedback … READ MORE
Are Rare Patient Voice panelists spread across the United States?
We get several variations of this question. Since many people know we recruit patients at patient events like walks and conferences, they wonder if we have patients from all over … READ MORE
My Least Favorite Topic – No-Shows
As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). What do I least like to hear about – No-shows! … READ MORE
Does Rare Patient Voice have patients with other diseases or conditions?
Many of you probably know that we list the panels and counts on the website. You can go to https://rarepatientvoice.com/for-researchers/patient-panels. But what if you are looking for a patient group … READ MORE
What Patient Information Does Rare Patient Voice Collect?
One question we hear often from our clients is, what patient information do we collect? When we sign up patients (and their caregivers) in person at patient events, we have … READ MORE
