“Hi I’m Rachel,@rachcutiepie, I’m 17 years old, and I have (get ready): Crohn’s Disease, Juvenile Ideopathic Arthritis, Uveitis, Osteoporosis, POTS, Adrenal Insufficiency, Chronic Fatigue Syndrome (as well as anxiety, depression, … READ MORE
Road to Rare Disease Day: Tara’s Story
“My name is Tara Zier and I was diagnosed with a rare disease called Stiff Person Syndrome in 2017. SPS is a progressive neurological condition with autoimmune features. People have … READ MORE
