#RareDiseaseDay is a time to raise awareness of the issues facing over 300 million people living with rare diseases worldwide. At Rare Patient Voice, we are committed to bringing the … READ MORE
Road to Rare Disease Day: Tara’s Story
“My name is Tara Zier and I was diagnosed with a rare disease called Stiff Person Syndrome in 2017. SPS is a progressive neurological condition with autoimmune features. People have … READ MORE
Road to Rare Disease Day: Bexton’s Story
Leading up to Rare Disease Day on February 28, we will be sharing personal stories from some of the amazing patients and caregivers who make up our Rare Patient Voice … READ MORE
