One of the great things about participating in a Rare Patient Voice study is that we pay you by check. So, you can use it for whatever you need, you … READ MORE
A Peek Behind the Scenes at Rare Patient Voice
Rare Patient Voice is now six years old. We’ve completed over 3,000 studies, we have 95,000 patients and caregivers, and are proud to have paid over 4.1 million dollars to … READ MORE
Get to Know: ALS
Amyotrophic Lateral Sclerosis, or ALS, has been gaining a lot of recognition over the past few years. It used to be known as Lou Gehrig’s Disease. But now most people … READ MORE
Why didn’t I qualify for a survey? And will my data be used even if I didn’t qualify?
One of the most frustrating things we hear from our patients is when they don’t qualify for a study. They are interested, they have great opinions to offer, and they’ve … READ MORE
What health conditions do you accept?
Patients and caregivers ask, will I qualify to join Rare Patient Voice? We accept people with all health conditions! You’d think with a name like Rare Patient Voice, it would … READ MORE
