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Helping Patients with Rare Diseases Voice Their Opinions

About Us
For Patients
For Researchers
Clinical Trial Recruitment
Referral Program
Blog
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- Business Blog
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Case Studies

Helping patients and caregivers share their voices

Why didn’t I qualify for a survey? And will my data be used even if I didn’t?

June 1, 2019 Wes Michael

One of the most frustrating things we hear from our patients is when they don’t qualify for a study. They are interested, they have great opinions to offer, and they’ve … READ MORE

Filed Under: Community, Patient

Preparing your home for elderly seniors

January 16, 2018 Wes Michael

By Jane Davis There comes a time in everyone’s life as they age, that they need help with general everyday life. For some, moving into retirement communities adapted to those … READ MORE

Filed Under: Patient

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Latest Blog Posts

Wes Michael Discusses the Patient Voice on Raising Rare Podcast
RPV’s Pam Cusick to Share Patient Views on Clinical Trial Awareness
Weekly Warrior: Meet Amy
Meet Our Team: Skyler Swagart, Patient Advocacy Associate
Rare Patient Voice Surpasses 10,000 Project Mark

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