“I’m Kim, @chronic.care, and I have EDS, PoTS, MCAS, Gastroparesis, Intestinal and esophageal dysmotility, and all the related complications. My health issues started as a young child – I remember … READ MORE
Weekly Warriors: Meet Abby
“Hi everybody ! My name is Abby @veggie_dancer_recovering. I have gastroparesis, POTS, hEDS, SMAS, Crohn’s disease and a neurogenic bladder. I have separate G and J tubes, a hickman central … READ MORE
Weekly Warriors: Meet Madison
In a new feature, each week we will spotlight an amazing patient or caregiver who is part of the Rare Patient Voice community. “Hi I’m Madison! At birth I was … READ MORE
Bloodstream Podcast Interview Wes Michael on Origins of RPV
Nearly every successful venture has its origins in a fresh idea, or a new twist on an old one. On the latest episode of Believe Ltd’s Bloodstream podcast, Wes Michael … READ MORE
Rare Patient Voice Launches New “Sharing My Voice” Video Series
Patients and caregivers are the leading experts on the diseases and conditions impacting their lives everyday. Researchers and companies are increasingly listening to the patient voice in developing products and … READ MORE
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