“Hi everybody ! My name is Abby @veggie_dancer_recovering. I have gastroparesis, POTS, hEDS, SMAS, Crohn’s disease and a neurogenic bladder. I have separate G and J tubes, a hickman central line and a suprapubic catheter. I’ve been on TPN for about 4 years now.
I have a seven year old son who is my whole world. He is a blessing in my life. I’ve been a vegetarian since I was 11 and a vegan since I was 15.
I’ve been dancing since I was 2 and LOVE ballet and tap. I was in school for nursing and hope to go back to it soon but my health has put that dream on hold. I’m on medical leave right now.
There are so many rare diseases out there. Rare Patient Voice can bring you together with others with the same diagnoses and you can help out other people. It’s nice knowing you’re not alone in the struggle.”