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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Let’s Name our Zebra Mascot – but not Zebra McZebface!

July 29, 2020 Wes Michael

Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE

Filed Under: Business, Community, Patient

We can’t see you at events, but we still want you!

July 16, 2020 Wes Michael

We at Rare Patient Voice are used to attending hundreds of patient events every year. Walks, conferences, educational symposia. Of course, they are all cancelled this year, some have become … READ MORE

Filed Under: Community, Patient

Disabled Individuals Can Get a Ticket to Work

July 6, 2020 Wes Michael

Here is information on Social Security Administration’s Ticket to Work program. Individuals who receive Social Security Disability benefits often worry that they will be unable to earn any type of … READ MORE

Filed Under: Community, Patient

What is the SSA’s PASS (Plan for Achieving Self Support) Program?

July 6, 2020 Wes Michael

We wanted to pass this along about the Social Security Administrations’ PASS program. The Social Security Administration’s Plan for Achieving Self Support (PASS) is a program intended to help people with disabilities … READ MORE

Filed Under: Community, Patient

COVID-19 Impact on patients with chronic conditions and those who are immunocompromised

April 2, 2020 Pam Cusick

With the recent outbreak of the novel coronavirus (COVID-19) in the US, InCrowd wanted to understand how patients with chronic conditions and those who are immunocompromised have been impacted by … READ MORE

Filed Under: Business, Patient, Uncategorized Tagged With: chronic illness, covid-19, patients

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Rare Patient Voice

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Rare Patient Voice, LLC, Market Research, Towson, MD
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