As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). We started working with WhatNext not long after I founded … READ MORE
The North Wind and the Sun
In first grade, our teacher, Mrs. Culver would gather us on the floor in the front of the classroom at Sandy Bank school and read stories to us. There’s one … READ MORE
Lessons from the Tortoise and the Hare
I’m sure you all remember the story of the tortoise and the hare. The hare is much faster than the tortoise and he gets off to a much faster start … READ MORE
Don’t be surprised to get a text from Rare Patient Voice
For years now, we’ve sent invites to our Rare Patient Voice studies out to you by email. Recently, we ran in to a temporary email issue and in a pinch … READ MORE
How does Rare Patient Voice Work? Can I get paid for doing surveys?
Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
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