“Hello beautiful people! My name is Jade, @msjadeaya and I am a Childhood Ovarian Cancer Thriver. In February 2005, I was just 15 years old when I reported having missed … READ MORE
Real & Rare with Sarah: The Stages of Life with a Rare Disease
Life is all about choices. What career path do you want to take? Turn left, or right? Do you want to be single or find a partner? What would you … READ MORE
Weekly Warrior: Meet Rachel Cutie Pie – Rare Patient Voice
“Hi I’m Rachel,@rachcutiepie, I’m 17 years old, and I have (get ready): Crohn’s Disease, Juvenile Ideopathic Arthritis, Uveitis, Osteoporosis, POTS, Adrenal Insufficiency, Chronic Fatigue Syndrome (as well as anxiety, depression, … READ MORE
The Rare Disorder Podcast interviews RPV’s Wes Michael
It’s important to nurture the next generation of patient advocates, but also to listen to and learn from them now. One of these impressive young people is Shivani Vyas, a graduating … READ MORE
Weekly Warrior: Meet Sam
“Hello! My name is Sam, @cancerculture. I’m 23 years old and a Leukemia survivor. I was diagnosed with Acute Lymphoblastic Leukemia at 20 and my whole life changed in an … READ MORE
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