• About Us
    • Awards
    • Careers
    • Giving Back
    • In the News
    • Meet Our Team
    • RPV Store
    • Trusted Partners
    • Vision, Mission and Core Values
  • For Patients
    • Clinical Trial Opportunities
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
    • Sign Up to Participate
    • Study Opportunities
    • Testimonials
    • Types of Research
  • For Researchers
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Business Blog
    • Patient Blog
  • Sign In
  • Case Studies

Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Awards
    • Careers
    • Giving Back
    • In the News
    • Meet Our Team
    • RPV Store
    • Trusted Partners
    • Vision, Mission and Core Values
  • For Patients
    • Clinical Trial Opportunities
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
    • Sign Up to Participate
    • Study Opportunities
    • Testimonials
    • Types of Research
  • For Researchers
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Business Blog
    • Patient Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Weekly Warrior: Meet Kass

October 14, 2022 Laura Mullen

“My name is Kassidy Brewer from Murrieta, California. I’m currently 28 years old. On August 4th of 2008 after losing consciousness, I was intubated to keep me breathing when an MRI revealed a major bleed in my brain located near the brainstem. At this point our hospital was not equipped to deal with this type of case, so I was then airlifted to Rady Children’s Hospital in San Diego. The attending doctor told my family that we should prepare for the worst, and possibly even discuss donating my organs. But they stood strong in their faith and politely told the doctors and social workers that God had other plans for Kass. But I’m a fighter and although I have no recollection of this, I knew that God was with me. It was determined that I was born with a rare birth defect called an Arterial Venous Malformation, otherwise known as an “AVM.” I remained on life support and lay in a coma for over 3 1/2 months. The progress was very slow, and after 3 1/2 months in the hospital, it was decided that I should go home and get strong enough to come back to Rady for in-patient rehabilitation. My family brought me home weighing about 78 pounds as a 14-year-old. I had a feeding tube in my stomach, and I had to begin to relearn everything. I put in the work, and after 16 weeks in rehab, I was sent home to begin my “new normal.”

I suffered a stroke during one of the surgeries that left me with severe ataxia on my left side. Between the stroke and the AVM rupture, I was left with challenges in my balance, left-side ataxia, double vision, and hearing impairment. I had a shunt placed in my brain to drain excess cerebral fluid, and sadly that has failed 7-8 times. Other than the challenges that I just mentioned above, I’m healthy and active! I since went on to get my drivers license and graduate from high school, on time and with my class! From there I decided to pursue my Associates Degree at Mount San Jacinto Community College. I was so excited to push my walker across that stage as a proud college graduate. Additionally I went on to the American College of Healthcare Sciences earning a Certificate in Holistic Wellness Coaching as well as an additional Certificate in Christian Health mentoring. If my story can help to inspire just one person to overcome whatever their situation is, it’s been worth it!”  

 

Filed Under: Patient

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Find us in the community
  • Learn about us
  • Privacy Policy
  • Read our blog for patients
  • Sign up to participate
  • Vision, Mission and Core Values

For Related Groups

  • Are you a researcher?
  • Rare Patient Voice Referral Partner Program
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Rare Patient Voice, LLC, Market Research, Towson, MD
Rare Patient Voice, LLC, Market Research, Towson, MD
BHBIA Corporate Member logo
CIRQ 27001 certified logo
EPHMRA Agency Member logo
ESOMAR logo
Insights Association Company Member
Intellus Worldwide logo

©2026. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2026 . All Rights Reserved.

Copyright © 2026 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT