“Hello, my name is Darren Daniel and I’m also known as TikTok Kidney Warrior or Ttkwarrior for short. I was diagnosed with Chronic Kidney Disease in 2016, and since … READ MORE
Weekly Warrior: Meet Marith
“Hi, my name is Marith (@clusterkoppie)! I’m 24 years old and I live in the Netherlands. 4.5 years ago I was diagnosed with Chronic Cluster Headache. It is a neurological … READ MORE
Weekly Warrior: Meet Tom
“After having a variety of bizarre symptoms arise in the year prior, I was diagnosed with Narcolepsy with Cataplexy one year ago today (August 20th). While I’ve spent the last … READ MORE
Weekly Warrior: Meet Kelsey
Kelsey is a queer disabled patient advocate based out of the greater Los Angeles area. They have Chronic Migraine, Fibromyalgia, Scoliosis, Hypermobility Syndrome, and other chronic conditions. They hold a … READ MORE
Need to raise funds for your org’s efforts? Join our referral program and let RPV help amplify your voice!
What is the RPV referral program? Rare Patient Voice connects patients and family caregivers with opportunities to take part in paid research studies and share their insights to help researchers … READ MORE
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