“My name is Kassidy Brewer from Murrieta, California. I’m currently 28 years old. On August 4th of 2008 after losing consciousness, I was intubated to keep me breathing when an … READ MORE
Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight
President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses … READ MORE
“Beyond Limits” Explores Rare Disease Men’s Thoughts on Mental Health
On World Mental Health Day, Rare Disease Patient and Advocate David Ross Releases New Film, “Beyond Limits: Rare Men Talking Mental Health” Towson, MD, 10.10.2022 – Today, in support … READ MORE
Weekly Warrior: Meet K
“Hi, I’m K, I’m a 19 year-old male, it’s nice to meet you! I was originally diagnosed with a bunch of stuff as a child after I had a myriad … READ MORE
Weekly Warrior: Meet Tara
“My name is Tara and I have Narcolepsy type 1 and Hyper Mobility Ehler’s-Danlos syndrome (HEDs). It took a long time to get diagnosed with both of these conditions and … READ MORE
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