“Hi, I’m Dani. I’m 19 and from New Zealand. I’m a survivor of E-coli O157:h7 and Hemolytic Uremic Syndrome (HUS). Both life threatening illnesses have left me with multiple chronic … READ MORE
Weekly Warrior: Meet Kaitlyn
“Hello everyone! I’m Kaitlyn ( @trusting.my.gut ). I am 22 years old and live with a whole list of conditions including POTS, Chronic Lyme Disease, PCOS, Cyclic Vomiting Syndrome, Hidradenitis … READ MORE
Weekly Warrior: Meet Cydney
“Hello!!! I’m Cydney!! I am a hidradenitis suppurativa warrior. I’ve been battling with HS since 12 years old when boils started appearing on my inner thighs. It attacked my … READ MORE
RPV Celebrates 10th Anniversary in 2023!
A Perfect 10! Rare Patient Voice Celebrates Its Tenth Anniversary For a decade, RPV has connected clients with patients and family caregivers for research studies Towson, MD, 1.3.2023 – This … READ MORE
Weekly Warrior: Meet AJ
“Hi, I’m AJ. I’m 19 and I’ve lived with chronic and mental illness since for 13 years with very little answers. We are still searching for answers today. I am … READ MORE
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