“Hello!!! I’m Cydney!! I am a hidradenitis suppurativa warrior. I’ve been battling with HS since 12 years old when boils started appearing on my inner thighs. It attacked my … READ MORE
RPV Celebrates 10th Anniversary in 2023!
A Perfect 10! Rare Patient Voice Celebrates Its Tenth Anniversary For a decade, RPV has connected clients with patients and family caregivers for research studies Towson, MD, 1.3.2023 – This … READ MORE
Weekly Warrior: Meet AJ
“Hi, I’m AJ. I’m 19 and I’ve lived with chronic and mental illness since for 13 years with very little answers. We are still searching for answers today. I am … READ MORE
Weekly Warrior: Meet Jamie
“My name is Jamie. I have Asthma, Multiple Sclerosis, Epilepsy, Trigeminal Neuralgia, and GI issues. At 12, I began to have horrible breathing issues that led to the diagnosis of … READ MORE
Weekly Warrior: Meet Erika
“Hello, my name is Erika. I was diagnosed with ulcerative colitis in December of 2017. At first I didn’t know what those words meant. I had no idea what that … READ MORE
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