It’s important to nurture the next generation of patient advocates, but also to listen to and learn from them now. One of these impressive young people is Shivani Vyas, a graduating … READ MORE
Weekly Warrior: Meet Sam
“Hello! My name is Sam, @cancerculture. I’m 23 years old and a Leukemia survivor. I was diagnosed with Acute Lymphoblastic Leukemia at 20 and my whole life changed in an … READ MORE
Real & Rare with Sarah: Make Time for You
As someone who has been living with a rare disease diagnosis for eight years, I often get asked this one question over and over again: “What advice would you give … READ MORE
Weekly Warrior: Meet Camila
“My name is Camila Almonte, I’m 15 yrs old, and I was diagnosed with Crohn’s disease in August 2020 when I was 14. This has been a long journey full … READ MORE
Weekly Warrior: Meet Kayla
“Howdy, I’m Kayla @Battle2Survive. I’m a young lady that loves life more now than ever! My diagnosis are MSA, SMAS, Autonomic Nervous System Failure, POTs, and other diagnosis. Growing up … READ MORE
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