“Project Sebastian was started by the father of a young boy who was misdiagnosed in the beginning of their journey. Sebastian was diagnosed with epilepsy, then started losing his vision, … READ MORE

Did you know that there are over 300 million living with a rare disease worldwide, and approximately 30 million in the United States alone? Just in time for #RareDiseaseDay, Rare … READ MORE

Grace Charrier, who is of African heritage, resides in Brooklyn, New York. She is a Stage 3 Triple-Negative breast cancer survivor. Shocking, because she had no symptoms whatsoever. A global … READ MORE

“It all started in November 2021 when I became very ill; I thought I had a severe case of COVID-19, but my tests kept coming back negative. My symptoms lessened, … READ MORE

“Hi, my name is Jen. I suffer from Myasthenia Gravis. It is a rare neuromuscular autoimmune disease. My body creates antibodies that block the receiving signals in my muscles. So my … READ MORE