“My name is Brenda Fregger, I was in my mid 30’s when the first symptoms of a rare incurable disease emerged; it took six years, five doctors, nine orthopedic surgeries, … READ MORE

“Hi! I’m Grace. I’m 23 and a warrior. I was diagnosed with Hypermobile Ehlers-Danlos, a connective tissue disorder caused by defects in a protein called collagen which affects more than … READ MORE

  “I’m Ira, a social worker, advocate, influencer and mom living in Berlin. I started my Instagram account when I was diagnosed with Sjogrens syndrome after a long doctor’s marathon. … READ MORE