Our latest Weekly Warrior is Michael, a passionate young cancer advocate and social media influencer. In 2020, he was diagnosed with a rare form of lymphoma and went on … READ MORE
RPV Announces New Electronic Payment Option for Patients
Electronic Direct Deposit Now Offered for Fast, Convenient Payments TOWSON, MD, June 15, 2023 – Rare Patient Voice LLC, a leading research recruitment firm, has announced it is now offering … READ MORE
Weekly Warrior: Meet Michelle
RPV’s newest Weekly Warrior is Michelle, aka @MamaBearforRare. Her young daughter Hailey lives with a rare genetic disease called Jordan’s Syndrome. Michelle recently shared their story in this video linked … READ MORE
Weekly Warriors: Meet Katie and Jolene
Mom Katie and daughter Jolene are our latest Weekly Warriors. Their moving story, initially shared on RPV’s TikTok account, has gone viral, with over 30k views on TikTok and Instagram … READ MORE
Weekly Warrior: Meet Keyla
“Hi, I’m Keyla, I’m 38 years old and I have Crohn’s Disease, and I am a care partner to a 13-year-old with UC. I also have Thoracic Outlet Syndrome, Endometriosis, … READ MORE
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