Did you know that many of RPV’s staffers have roots in the patient community – either as patients or family caregivers themselves? Hear more from President Wes Michael, in celebration … READ MORE
Weekly Warrior: Meet Rachel
Meet Rachel, our latest Weekly Warrior. A chronic illness content creator, Rachel lives with a number of conditions, including Crohn’s disease and juvenile arthritis. She shares her story in this … READ MORE
Weekly Warrior: Meet Danielle
Our latest Weekly Warrior is 28 year-old Danielle, who shares her journey with congenital myopathy of unknown origin since childhood in this video. It is frustrating not to know the … READ MORE
Happy July 4th from Rarity and All of Us at RPV!
All of us at Rare Patient Voice wish you and yours a safe and happy Fourth of July 2023!
Weekly Warrior: Meet Dylan
Dylan is our latest Weekly Warrior. He lives with an extremely rare metabolic disorder, MDP syndrome (Mandibular hypoplasia, Deafness and Progeroid features), that prevents fatty tissue from being stored under … READ MORE
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