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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Weekly Warriors: Meet Carlie and Arlo

October 6, 2023 Laura Mullen

  Sharing their story are our newest Weekly Warriors, Carlie and Arlo. Little Arlo was born with trisomy 21, which accounts for 95% of all known cases of Down syndrome, … READ MORE

Filed Under: Patient

Weekly Warrior: Meet Connie

September 22, 2023 Laura Mullen

Connie is our latest Weekly Warrior. She lives with two complex conditions: a rare bleeding disorder and an autoimmune disease. Connie credits her great support system for helping her stay … READ MORE

Filed Under: Patient

Weekly Warrior: Meet Holly

September 1, 2023 Laura Mullen

Holly is our latest Weekly Warrior. She had to stop working in the medical field because of spinal adhesive arachnoiditis, the painful condition she lives with that has no cure. … READ MORE

Filed Under: Patient

Weekly Warrior: Meet Charlotte

August 25, 2023 Laura Mullen

Charlotte is our newest Weekly Warrior. Her diagnosis is functional neurological disorder (FND), and she lives with symptoms including numbness, fatigue, chronic pain, and spasms. Click on the link below … READ MORE

Filed Under: Patient

Weekly Warrior: Meet Hope

August 18, 2023 Laura Mullen

Our newest Weekly Warrior is Hope, who lives with numerous conditions. People with disabilities have interests like everyone else. Hope likes to post on social media about makeup and share … READ MORE

Filed Under: Patient

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