Happiest holidays to all of the wonderful patients, family caregivers, and clients we work with all year long. We are very lucky to have you as part of the RPV … READ MORE
Weekly Warrior: Meet Aaron
Aaron from Mississippi is our latest Weekly Warrior. Despite living with Crohns disease and the rare genetic bone disease Hypophosphatasia, working fulltime for a hospital system, and raising three … READ MORE
Weekly Warrior: Meet Nicole
Our latest Weekly Warrior is Nicole, a model/actor/chronic illness advocate originally from Boston and currently living in Los Angeles. Living with Multiple Sclerosis since she was ten hasn’t always been … READ MORE
Weekly Warrior: Meet Amy
Our latest WeeklyWarrior is Amy, a doctoral student, violinist, and violin teacher from Texas. She lives with Ehlers-Danlos syndrome, a rare condition that affects connective tissue. Amy shares her story … READ MORE
Happy Thanksgiving from Rare Patient Voice!
Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE
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