“Hello beautiful people, my name is Joey Torre. I’m a proud advocate for @hsdisease. I share my stories and experiences as a person living with Hidradenitis Suppurativa on social media. … READ MORE
Weekly Warrior: Meet Sadie
“In walks a 20-something year old not-unattractive, confident, vibrant woman. She was prom queen, graduated from college with a degree in mathematics, held executive positions in her sorority, moved out … READ MORE
Weekly Warrior: Meet Lenette
“Hey! I’m Lenette at @_lifewithcrohnsdisease_! I began having health issues in my mid-twenties, around 2007. I had an appendectomy with my small intestine adhered to the appendix. IBD was suspected … READ MORE
Weekly Warrior: Meet Kass
“My name is Kassidy Brewer from Murrieta, California. I’m currently 28 years old. On August 4th of 2008 after losing consciousness, I was intubated to keep me breathing when an … READ MORE
Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight
President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses … READ MORE
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