As a lead up to Rare Disease Day 2024, PicnicHealth recently interviewed Rare Patient Voice‘s Marketing and Communications Director, Laura Mullen, on RPV’s role in research, how we work with … READ MORE
The Gold Standard: Quality Takes Time
Rare Patient Voice President and Founder Wes Michael discusses why it’s not always easy to become a member of RPV. The simple answer is: quality takes time. We have to … READ MORE
Weekly Warrior: Meet Kiera
Kiera is our latest Weekly Warrior. An advocate and researcher, she lives with Addisons disease and Ehlers-Danlos syndrome. She shares her story here. https://www.linkedin.com/feed/update/urn:li:activity:7159210935558053888
Michael & Mom’s RPV Rap
On January 5, Michael and Ashlee Cramer joined RPV for an inspiring talk during our virtual company retreat. A bit of background: Michael Cramer is a 22-year-old cancer survivor, bone … READ MORE
Weekly Warrior: Meet Anita
Anita is our latest Weekly Warrior. In 2020 she was diagnosed with Multiple Sclerosis, and her life has changed dramatically since then. Anita shares her story here. https://www.linkedin.com/feed/update/urn:li:activity:7154126202507595776
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