RPV Founder and President often likes to express himself through song! Today he shares a new rendition of an old ditty, now about the Rare Patient Voice experience.
Weekly Warrior: Meet Haley
Our latest Weekly Warrior is Haley, who has been living with a sleep disorder since she was eight years-old. Her road to a diagnosis was long, and Haley was … READ MORE
Weekly Warrior: Meet Mackenzie
Our latest Weekly Warrior is Mackenzie, caregiver to her son Josiah. He lives with Familial cold autoinflammatory syndrome, a rare genetic disorder characterized by episodes of rash, fever, and joint … READ MORE
Pam Cusick, Featured Member of Learning Disabilities of America Assoc.
Last month in Orlando, FL, RPV Senior Vice President Pam Cusick delivered a powerful multimedia presentation on neurodiversity and workplace accommodations at the 61st Annual Learning Disabilities Association of America … READ MORE
Weekly Warrior: Meet Jamie
Jamie, our latest Weekly Warrior, is a mom of two living with Lupus. She shares her story to make others feel supported in their own health journeys. https://www.linkedin.com/feed/update/urn:li:activity:7171893544230576129
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