Rachel is our latest Weekly Warrior. She lives with Narcolepsy with Cataplexy, and is dedicated to providing accurate portrayals and raising awareness about the sleep disorder that has so greatly … READ MORE
Weekly Warrior: Meet Rich
Our latest Weekly Warrior is Rich, who has lived with Primary Progressive Multiple Sclerosis for the past ten years. Though the disease has had a significant impact on his life, … READ MORE
Come and Listen with Wes Michael
RPV Founder and President often likes to express himself through song! Today he shares a new rendition of an old ditty, now about the Rare Patient Voice experience.
Weekly Warrior: Meet Haley
Our latest Weekly Warrior is Haley, who has been living with a sleep disorder since she was eight years-old. Her road to a diagnosis was long, and Haley was … READ MORE
Weekly Warrior: Meet Mackenzie
Our latest Weekly Warrior is Mackenzie, caregiver to her son Josiah. He lives with Familial cold autoinflammatory syndrome, a rare genetic disorder characterized by episodes of rash, fever, and joint … READ MORE
- « Previous Page
- 1
- …
- 9
- 10
- 11
- 12
- 13
- …
- 49
- Next Page »







