Our newest Weekly Warrior is Ashley, a loving caregiver to her son who lives with a rare cancer. Together they share their experiences on social media and through their “Michael … READ MORE
10 Facts for 10 Years of RPV: #1 – Many of Our Staffers Come from the Patient Community
Did you know that many of RPV’s staffers have roots in the patient community – either as patients or family caregivers themselves? Hear more from President Wes Michael, in celebration … READ MORE
Weekly Warrior: Meet Rachel
Meet Rachel, our latest Weekly Warrior. A chronic illness content creator, Rachel lives with a number of conditions, including Crohn’s disease and juvenile arthritis. She shares her story in this … READ MORE
Weekly Warrior: Meet Danielle
Our latest Weekly Warrior is 28 year-old Danielle, who shares her journey with congenital myopathy of unknown origin since childhood in this video. It is frustrating not to know the … READ MORE
Happy July 4th from Rarity and All of Us at RPV!
All of us at Rare Patient Voice wish you and yours a safe and happy Fourth of July 2023!
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