Tiffany is a blindness accessibility and audio description consultant. She has danced professionally with the company Jess Curtis Gravity in San Francisco and Berlin and serves on their Board of … READ MORE
Weekly Warrior: Meet Kait
Kait from Monterey, CA is our latest Weekly Warrior. She lives with Miserable malalignment syndrome (MMS), a rare condition that can cause pain and discomfort in the joints. Kait shares … READ MORE
Weekly Warrior: Meet Vanessa
Vanessa from Austin, TX is our latest Weekly Warrior. She lives with multiple chronic illnesses including Addison’s disease, which destroys the adrenal glands. Previously a very physically active person, Vanessa … READ MORE
Weekly Warrior: Meet Sarah
Our latest Weekly Warrior is Sarah, a mom and caregiver to her 11 year-old daughter who lives with Wiedemann-Steiner syndrome, a rare genetic condition that can affect multiple organ systems. … READ MORE
Happy Fourth of July from RPV!
Wishing everyone a safe and happy July 4th, from all of us (including Rarity, decked out here as Uncle Sam) at Rare Patient Voice!
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