We are very grateful to continue our mission of connecting patients and family caregivers with opportunities for participation in research! Wishing you and yours a wonderful Thanksgiving.
Happy Halloween from RPV!
A happy and safe Halloween from all of us at Rare Patient Voice!
Weekly Warrior: Meet Julie
“Hello world! Julie here, aka @msxstrong. l was diagnosed with Multiple sclerosis back in 2019, after years of grappling with different symptoms. One of the many things I’ve learned from … READ MORE
Weekly Warrior: Meet Amy
Amy Gietzen is a passionate patient advocate, public speaker, program developer, and educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Several years later she was also … READ MORE
Happy Labor Day from RPV!
Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
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