A happy and safe Halloween from all of us at Rare Patient Voice!
Weekly Warrior: Meet Julie
“Hello world! Julie here, aka @msxstrong. l was diagnosed with Multiple sclerosis back in 2019, after years of grappling with different symptoms. One of the many things I’ve learned from … READ MORE
Weekly Warrior: Meet Amy
Amy Gietzen is a passionate patient advocate, public speaker, program developer, and educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Several years later she was also … READ MORE
Happy Labor Day from RPV!
Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
Weekly Warrior: Meet Keyla
Our latest Weekly Warrior is Keyla, who shared her story with us recently. “Hi, I’m Keyla, I’m 38 yrs old and I have Crohn’s Disease, and I am a care … READ MORE
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