“In walks a 20-something year old not-unattractive, confident, vibrant woman. She was prom queen, graduated from college with a degree in mathematics, held executive positions in her sorority, moved out … READ MORE
Weekly Warrior: Meet Lenette
“Hey! I’m Lenette at @_lifewithcrohnsdisease_! I began having health issues in my mid-twenties, around 2007. I had an appendectomy with my small intestine adhered to the appendix. IBD was suspected … READ MORE
Weekly Warrior: Meet Kass
“My name is Kassidy Brewer from Murrieta, California. I’m currently 28 years old. On August 4th of 2008 after losing consciousness, I was intubated to keep me breathing when an … READ MORE
Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight
President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses … READ MORE
“Beyond Limits” Explores Rare Disease Men’s Thoughts on Mental Health
On World Mental Health Day, Rare Disease Patient and Advocate David Ross Releases New Film, “Beyond Limits: Rare Men Talking Mental Health” Towson, MD, 10.10.2022 – Today, in support … READ MORE
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