“Hi I’m Amanda, @chronicallymandy02. I have hEDS, POTS, MCAS, Gastroparesis, Endometriosis, Asthma, Prinzmetal Variant Angina (PVA), chronic migraines, and chronic pain. My journey started early in life at age 6 … READ MORE
Weekly Warrior: Meet Kim
“I’m Kim, @chronic.care, and I have EDS, PoTS, MCAS, Gastroparesis, Intestinal and esophageal dysmotility, and all the related complications. My health issues started as a young child – I remember … READ MORE
Weekly Warriors: Meet Abby
“Hi everybody ! My name is Abby @veggie_dancer_recovering. I have gastroparesis, POTS, hEDS, SMAS, Crohn’s disease and a neurogenic bladder. I have separate G and J tubes, a hickman central … READ MORE
Weekly Warriors: Meet Madison
In a new feature, each week we will spotlight an amazing patient or caregiver who is part of the Rare Patient Voice community. “Hi I’m Madison! At birth I was … READ MORE
Bloodstream Podcast Interview Wes Michael on Origins of RPV
Nearly every successful venture has its origins in a fresh idea, or a new twist on an old one. On the latest episode of Believe Ltd’s Bloodstream podcast, Wes Michael … READ MORE
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