“Hi, my name is Marith (@clusterkoppie)! I’m 24 years old and I live in the Netherlands. 4.5 years ago I was diagnosed with Chronic Cluster Headache. It is a neurological … READ MORE

“After having a variety of bizarre symptoms arise in the year prior, I was diagnosed with Narcolepsy with Cataplexy one year ago today (August 20th). While I’ve spent the last … READ MORE

Kelsey is a queer disabled patient advocate based out of the greater Los Angeles area. They have Chronic Migraine, Fibromyalgia, Scoliosis, Hypermobility Syndrome, and other chronic conditions. They hold a … READ MORE

Allie Williams is a 41-year-old vocal music teacher with Spinal Muscular Atrophy (SMA) Type 2.  She has been on one of the three available treatments for SMA, Evrysdi, for 22 … READ MORE