“Hello, my name is Sharon M @pauln_josh_mom. I was diagnosed with cold agglutination disease, hemolytic anemia. It was around seven years and many doctors to finally be diagnosed. It’s a … READ MORE
Weekly Warrior: Meet Elouise
“Elouise is an 11 month old ball of fire. At 3 weeks old she stopped eating. We’ve been on a mission to figure out why ever since. So far we … READ MORE
Weekly Warrior: Meet Dani
“Hi, my name is Dani @d_liz_m and I have gastroparesis, intestinal dysmotility and dysautonomia among other things. I was diagnosed around 6-7 years ago. It could of been longer who … READ MORE
Straight Talk on Clinical Trials: Your Questions Answered
On February 16, CISCRP hosted the webinar “Straight Talk on Clinical Trials: Patient Perspectives on Study Participation,” moderated by Wes Michael of Rare Patient Voice and Mike Wenger of Informa … READ MORE
Weekly Warrior: Meet Rachel
“Hi, my name is Rachel, @rach_blogs. I suffer from severe GI issues. which I’ve had my whole life. I was first diagnosed with gastroparesis and started on meds/diet change in … READ MORE
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