Allie Williams is a 41-year-old vocal music teacher with Spinal Muscular Atrophy (SMA) Type 2. She has been on one of the three available treatments for SMA, Evrysdi, for 22 months and has had incredible gains, about which she loves to share information.
Allie is a classically trained vocalist and a graduate of Oklahoma State University’s Greenwood School of Music. She is also an advocate for Habitat for Humanity, an avid gamer and social media influencer. She is active on Tiktok, Instagram, and YouTube where she advocates educating people about SMA and promoting information about programs that assist disabled individuals with food and housing insecurity.
Allie also writes articles about her life and experiences for spinalmuscularatrophy.net. Her motto is “Representation Matters,” and she tries to be this example every day as she shows what life is like for her on social media.