“My name is Camila Almonte, I’m 15 yrs old, and I was diagnosed with Crohn’s disease in August 2020 when I was 14. This has been a long journey full … READ MORE
Weekly Warrior: Meet Kayla
“Howdy, I’m Kayla @Battle2Survive. I’m a young lady that loves life more now than ever! My diagnosis are MSA, SMAS, Autonomic Nervous System Failure, POTs, and other diagnosis. Growing up … READ MORE
Real & Rare with Sarah: May is Mental Health Awareness Month
Hello all in the RPV community! I want to take this opportunity to introduce myself. My name is Sarah Nesheim and I was recently onboarded with Rare Patient Voice as … READ MORE
Weekly Warrior: Meet Lydia
“Hi, I’m Lydia. I am 17 years old. And I am chronically ill and disabled. Growing up, I always got sick. I always complained of body aches and had poor … READ MORE
Weekly Warrior: Meet Mike
“Hi, my name is Mike Riley! I’m 40 years old and I’m from Cape Cod, Massachusetts. I have a debilitating illness called Duchenne Muscular Dystrophy. I was born in … READ MORE
- « Previous Page
- 1
- …
- 31
- 32
- 33
- 34
- 35
- …
- 49
- Next Page »







