“I am married and have two kids! A daughter that is 9 and a son that is 6. In January of 2018 I was diagnosed with Neuromylitis Optica! At the … READ MORE
Weekly Warrior: Meet Zoann
“I defended my Master’s thesis during an asthma attack while puffing on my portable nebulizer! I have cough variant asthma, which is a rare form of asthma. I also have … READ MORE
Rare Patient Voice Kicks off 2022 with Major Milestones and Staff Announcements
TOWSON, MD, January 3, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has started the new year off by reaching a milestone and announcing several … READ MORE
Weekly Warrior: Meet Amanda
“Hi I’m Amanda, @chronicallymandy02. I have hEDS, POTS, MCAS, Gastroparesis, Endometriosis, Asthma, Prinzmetal Variant Angina (PVA), chronic migraines, and chronic pain. My journey started early in life at age 6 … READ MORE
Weekly Warrior: Meet Kim
“I’m Kim, @chronic.care, and I have EDS, PoTS, MCAS, Gastroparesis, Intestinal and esophageal dysmotility, and all the related complications. My health issues started as a young child – I remember … READ MORE
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