New Informa Pharma Intelligence/Rare Patient Voice survey uncovers patient sentiment on clinical trial participation NEW YORK, July 27, 2021 (GLOBE NEWSWIRE) — Informa Pharma Intelligence, the global business intelligence provider for … READ MORE
Rare Patient Voice Celebrates a Lucky 7 Milestone!
Rare Patient Voice LLC (RPV), the leader in patient-focused recruiting, announced on 7/7/2021 that it has reached a major milestone in compensating participants for their feedback and input. Since its … READ MORE
RPV Basics
Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
How much detail to reveal in survey invitations?
As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). One of the biggest complaints that we get from our … READ MORE
Impact of the Covid-19 Pandemic on Rare Disease Patients and Caregivers
The COVID-19 pandemic has negatively affected people from different backgrounds and all walks of life. The struggle of one particular group has gone largely unnoticed – people diagnosed with rare … READ MORE
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