On Tuesday, May 10, RPV President Wes Michael was a guest on “Real Thoughts and Conversations,” a podcast hosted by Leon Thomas. The topic was patient advocacy and rare disease, … READ MORE
Weekly Warrior: Meet Meghan
“My name is Meghan and my rare disease is Acute Myeloid Leukemia. I was diagnosed in 2019 at the age of 23. For months I experienced symptoms like loss of … READ MORE
Weekly Warrior: Meet Coop
“By the time Coop was just a few months old he already had many surgeries under his belt. After the biggest of them, open heart surgery, the attending warned her … READ MORE
Weekly Warrior: Meet Tayler
“Hi, I’m Tayler @tmrandazzo24. I’m 22 years old and I’m a blood cancer survivor among many other things!! So for starters, I was diagnosed with Attention-Deficit Disorder (ADD) at the … READ MORE
Weekly Warrior: Meet Sharon
“Hello, my name is Sharon M @pauln_josh_mom. I was diagnosed with cold agglutination disease, hemolytic anemia. It was around seven years and many doctors to finally be diagnosed. It’s a … READ MORE
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