“Elouise is an 11 month old ball of fire. At 3 weeks old she stopped eating. We’ve been on a mission to figure out why ever since. So far we know she has Gastroparesis, GERD, severe constipation, dysphagia and Ptosis in her left eye. She has a G-tube and receives the majority of all her nutrition through this. She continues to undergo testing and despite her numerous surgeries, myriad of doctors visits, and other insane obstacles, she is one of the happiest babies. She’s also a spit fire who doesn’t take no for an answer! She has an older brother who is equally obsessed with her. We love sharing her story and raising awareness for rare diseases and feeding tubes!
@slalex33”
Would you like to be featured or to tell the story of a Weekly Warrior in your life? Contact stacey.haines@rarepatientvoice.com.
