• About Us
    • Awards
    • Careers
    • Giving Back
    • In the News
    • Meet Our Team
    • RPV Store
    • Trusted Partners
    • Vision, Mission and Core Values
  • For Patients
    • Clinical Trial Opportunities
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
    • Sign Up to Participate
    • Study Opportunities
    • Testimonials
    • Types of Research
  • For Researchers
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Business Blog
    • Patient Blog
  • Sign In
  • Case Studies

Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Awards
    • Careers
    • Giving Back
    • In the News
    • Meet Our Team
    • RPV Store
    • Trusted Partners
    • Vision, Mission and Core Values
  • For Patients
    • Clinical Trial Opportunities
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
    • Sign Up to Participate
    • Study Opportunities
    • Testimonials
    • Types of Research
  • For Researchers
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Business Blog
    • Patient Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Weekly Warrior: Meet Tayler

April 19, 2022 Laura Mullen

“Hi, I’m Tayler @tmrandazzo24. I’m 22 years old and I’m a blood cancer survivor among many other things????!! So for starters, I was diagnosed with Attention-Deficit Disorder (ADD) at the age of 8. And I’ve been on medication ever since which has helped me tremendously over the years! Fast forward, 3 years later I was diagnosed with Growth Hormone Deficiency (GHD), where I was put on Growth Hormone Therapy in the form of daily shots until I hit 5 feet tall.

When I turned 15, I was diagnosed with Idiopathic Scoliosis. And at the age of 16, I had developed two severe curves on my spine (measuring 69 and 50 degrees), and it got to the point where I needed spinal fusion surgery to fix it. 5 years later, about two weeks after turning 21, I was diagnosed with Non-Hodgkin’s Lymphoma on 12/11/20. ???? Primary Mediastinal B-Cell Lymphoma to be exact, which is a sub type of Diffuse Large B-Cell Lymphoma. As a result, I endured 6 cycles of Dose-adjusted R-EPOCH chemotherapy. From that point on, the next 6 months were beyond rough. I lost all my hair, had many scans and procedures done, and experienced horrible side effects along the way. But above all, I never let it get to me. On 4/2/21 I completed my last chemo cycle and got to ring the bell. On 2/18/22 I reached “complete remission” from my cancer after 434 days of fighting, wahoo! Currently, I am 1 year post chemo and I am doing considerably well considering all I have been through with virtually no long term side effects!

Finally, I love RPV because it allows me to feel heard, while at the same time getting to learn about all the amazing warriors out there.”

Filed Under: Patient

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Find us in the community
  • Learn about us
  • Privacy Policy
  • Read our blog for patients
  • Sign up to participate
  • Vision, Mission and Core Values

For Related Groups

  • Are you a researcher?
  • Rare Patient Voice Referral Partner Program
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Rare Patient Voice, LLC, Market Research, Towson, MD
Rare Patient Voice, LLC, Market Research, Towson, MD
BHBIA Corporate Member logo
CIRQ 27001 certified logo
EPHMRA Agency Member logo
ESOMAR logo
Insights Association Company Member
Intellus Worldwide logo

©2026. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2026 . All Rights Reserved.

Copyright © 2026 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT