Life is all about choices. What career path do you want to take? Turn left, or right? Do you want to be single or find a partner? What would you … READ MORE

As someone who has been living with a rare disease diagnosis for eight years, I often get asked this one question over and over again: “What advice would you give … READ MORE

Hello all in the RPV community! I want to take this opportunity to introduce myself. My name is Sarah Nesheim and I was recently onboarded with Rare Patient Voice as … READ MORE