What feedback do you get from clients? Feedback from clients is so useful to us! How else can we learn what we are doing right and where we need to … READ MORE
DRUG CATEGORIES: What Are the Hot New Ones?
Are we in the golden age of orphan drug development? As I’m recording this on Groundhog Day, the FDA groundhog must not have seen his shadow, he’s come out of … READ MORE
Who Are Our Clients?
As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour. Who are Rare Patient Voice’s Clients? We have worked with over … READ MORE
CHECKING ACCOUNTS: What If A Panelist Doesn’t Have A Checking Account?
Rare Patient Voice pays patients and caregivers by check when they complete a study. We’ve asked our panelists, and they prefer checks. You can’t pay rent or co-pays with a … READ MORE
CAREGIVERS: Does RPV Recruit Caregivers?
Do you recruit Caregivers? The other day was National Caregiver Day, so perfect timing for this great question! Often we talk about patients, but sometimes they can’t speak for themselves. … READ MORE
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