CAN’T FIND: Can’t Find What You’re Looking For On Our Website? Hi Wes here with a very special beginning of spring edition of You Ask, We Answer. Does Rare Patient … READ MORE
Get to Know: Sickle Cell Disease (SCD)
This is the first of our series about various diseases and health conditions that we are calling, “Get to Know.” We’ll provide some facts you may not have known about … READ MORE
Why didn’t I qualify for a survey? And will my data be used even if I didn’t?
One of the most frustrating things we hear from our patients is when they don’t qualify for a study. They are interested, they have great opinions to offer, and they’ve … READ MORE
Christian
My name is Christian and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis How does Rare Patient Voice fit into your life regarding support groups with others who understand/share … READ MORE
Kristopher
My name is Kristopher and I’m an RPV Patient Panelist who’s overcoming Hemophilia. I really like taking the surveys because I feel like I’m making an impact. I’m able to … READ MORE
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