Oak Wealth Advisors’ “The Special Needs Voice” podcast features interviews with top leaders in the special needs community. Host Tony Schneider hopes that listeners will learn something new and gain information for … READ MORE
Happy Labor Day from RPV!
Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
Rare Revolution and Pam Cusick on Bringing Patients and Researchers Together
RARE Revolution Magazine Engagement Associate Becky Pender recently caught up with Rare Patient Voice Senior Vice President Pam Cusick to learn how RPV is turning the tide for people living … READ MORE
Weekly Warrior: Meet Keyla
Our latest Weekly Warrior is Keyla, who shared her story with us recently. “Hi, I’m Keyla, I’m 38 yrs old and I have Crohn’s Disease, and I am a care … READ MORE
Meet Our Team: Ginger Segala, Business Development Associate
Ginger Segala earned a BA from the University of Maryland, College Park and her Masters in Social Work from the University of Maryland, Baltimore. As a member of the Rare … READ MORE
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