Anita is our latest Weekly Warrior. In 2020 she was diagnosed with Multiple Sclerosis, and her life has changed dramatically since then. Anita shares her story here. https://www.linkedin.com/feed/update/urn:li:activity:7154126202507595776
Meet Our Team: Ben Shedlock, Director of Field Operations
After earning a BA in Business Marketing from Maryland’s Towson University, Ben joined Rare Patient Voice in 2014 alongside Wes Michael as the first full time team member. As Director … READ MORE
Weekly Warriors: Meet Karen and Dominic
Our latest Weekly Warriors are caregiver Karen and her six year-old son Dominic, who lives with Congenital Disorders of Glycosylation and is nonverbal. Karen shares their story here. https://www.linkedin.com/feed/update/urn:li:activity:7151589544901931008
RPV Starts New Year By Reaching a Milestone
New Year, New Milestone! RPV Has Paid $13 Million to Patients & Family Caregivers for Participating in Research Since 2013 Towson, MD, 1.4.2024 – For over a decade, Rare Patient … READ MORE
A Very Happy New Year from RPV!
We’d like to take a moment to wish the entire Rare Patient Voice community – our staffers, patients, family caregivers, clients, and colleagues – a wonderfully Happy New Year! Here’s … READ MORE
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