This is to all of the wonderful patient advocacy groups that we’ve partnered with. We love to attend and exhibit at your events – conferences, symposia and walks. We get to meet your patients and caregivers, explain to them how they can take part in confidential surveys and tell their stories, as well as get paid for their participation. But with COVID-19, all the events we were scheduled to exhibit at have been cancelled or postponed. And while we know eventually things will get back to normal, in the meantime, we have a way to help your organizations earn some donations, and give your members something to do while they are in self-isolation.
We call it our Referral Program. We give your organization your own unique link to post on your website, your Facebook or Instagram page, or send in an email to your members. For those individuals who are interested, they click on the link and it sends them to our website, where they can learn what Rare Patient Voice is all about, and how to join if they are interested. There is even a video explaining the whole operation. For those who sign up, there are two good things that happen. 1) Patients and Caregivers receive a $5 gift card as a thank you, and 2) they also will be contacted for relevant surveys for which they earn a check at the rate of $100 per hour of their time. And your organization wins as well. We send you a check for $5 for each sign up that comes through your link.
Dozens of advocacy groups have been taking advantage of this referral program. We have one advocacy group that we love, called “We’re Not Drunk, We Have MS,” that has earned over eight thousand dollars from us over the past three years. We’re happy to provide references for you to check out.
Just let us know if you are interested. We’ll send more info and your own unique link to begin using right away, while we’re all still being isolated!
Thanks, and please subscribe to our YouTube channel!
