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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Pam Cusick Interviewed on Unlocked with Skot Waldron

February 27, 2024 Laura Mullen

The lead up to Rare Disease Day continues! RPV’s Pam Cusick recently sat down with communications expert Skot Waldron for an interview on his podcast, “Unlocked with Skot Waldron.” In … READ MORE

Filed Under: Business, Interviews, Patient

Wes Michael Interviewed on Live Life Rare Podcast

February 26, 2024 Laura Mullen

As Rare Disease Day 2024 approaches, Rare Patient Voice leadership have been interviewed on a number of rare disease podcasts. On the Life Life Rare podcast, RPV’s Wes Michael talked … READ MORE

Filed Under: Business, Interviews, Patient

It Happened to Me Rare Disease Podcast Interview with Wes Michael

February 25, 2024 Laura Mullen

Leading up to Rare Disease Day 2024, RPV President and Founder Wes Michael was interviewed on It Happened to Me: A Rare Disease & Medical Challenges Podcast, and the episode … READ MORE

Filed Under: Business, Interviews, Patient

RPV’s Pam Cusick Interviewed on the “Desperate for a Diagnosis” Podcast

June 1, 2023 Laura Mullen

In May, RPV Senior Vice President Pam Cusick was interviewed on market research veteran Laura Nozicka’s new podcast, “Desperate for a Diagnosis.” The conversation focused on the power of the … READ MORE

Filed Under: Business, Interviews

RPV President Wes Michael Interviewed on Entrepreneurship

February 14, 2023 Laura Mullen

Wes Michael, Founder and President of Rare Patient Voice, was interviewed recently by Go Solo on entrepreneurship, launching RPV, and his tips for those with ideas for a new business. … READ MORE

Filed Under: Business, Interviews

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Latest Blog Posts

  • Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research
  • Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
  • Sharing My Voice: Kathryn’s Story
  • Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
  • Meet Our Team: Patrick Kobrick, Business Development Associate

Check out our YouTube Channel

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What’s New at Rare Patient Voice?

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