“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
RPV’s Pam Cusick Talks Patients and Research on The Bridge Podcast
Pam Cusick, Senior Vice President of Rare Patient Voice, was recently a guest on The Bridge, the official podcast of the University of Maryland. She discussed how RPV empowers patients … READ MORE
Wes Michael Talks Patient Empowerment on 1 in 20 Rare Disease Podcast
The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in … READ MORE
Pam Cusick Shares About the Patient Voice on Leading From Our Scars Podcast
In the Leading From our Scars podcast, Jason and Tracy Binder share their journey through life’s trials – from high school romance to marriage, parenthood, and confronting the devastating impact … READ MORE
Talking Marketing Strategy on the Strategycast with Lori Jones
The Strategycast podcast explores the nature of what it means to be at the helm of marketing decisions. The goal of each episode is to have the audience come away … READ MORE
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