“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
Meet Our Team: Rheia Beganovic, Project Manager
Based in Bosnia, Rheia Beganovic has been a Project Manager with Rare Patient Voice since November 2021. Prior to working for RPV, she worked on a passenger cruise ship for … READ MORE
Happy Valentine’s Day from RPV!
At Rare Patient Voice, we love our patients, family caregivers, clients, and colleagues! Our zebra mascot Rarity and all of us at RPV wish all of you a Happy Valentine’s … READ MORE
Learn More About the RPV Premium Outreach Package
The Rare Patient Voice Golden Rule means recruiting the right patients, at the right time, for the right studies. How do we do that? Our Patient Advocacy Team is always … READ MORE
The RPV Golden Rule: Precision in Patient Recruitment
The RPV Golden Rule is simple yet powerful: Recruit the right patients, at the right time, for the right study. With a community of 180,000+ patients and family caregivers spanning 1,500+ … READ MORE
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